7/13/11

They're here and it's time to party!


Today we celebrated Roman's birthday (a couple days late.)  We waited for today because this was also the day that my  sister in law and her son arrived (at 3.30 a.m)
Both are good reasons to throw a party!


Roman wanted a camping/ survival theme party.
I was stumped for a cake idea but then decided to attempt to create a campfire. 
 This is the best I could come up with.
It was a hit...and we all needed a shot of insulin after consuming all that sugar.

Related to the camping theme he received an LED lantern, a pocket cutlery knife thing, and a "Bear" brand (that survival dude on tv.) survival kit.  He has been busy making fires with his new flint in the fire pit.




He's also looking forward to diving into this.
To quote his cousin who also has this Bible..
"It's awesome...the Bible has a lot of violence!"



I'm so happy that my nephew was here for Roman's birthday.   
My parents also came over for cake and gift opening time.   


It was muggy and hot here today so we also spent a little time at a neighbors swimming pool.  
We had a crazy rain / hail storm here last night and with the  heat today I wouldn't be surprised if we got more.


Super Auntie is back for the summer!



This is a new diving technique...it's called "The Plank"....and yes, he lands in the water with exactly that form.


Si, helped me make the birthday cake.   I'm pretty sure he was only helping me so he could have first dibs on the spatula.

Summer is flying by...
and with the arrival of 2 more family members it just got a whole lot more chaotic   loud  exciting.





7/12/11

When you hear the word cancer.



Sometimes life takes us through moments and experiences that in the long run seem inconsequential.  They get filed away in the memory bank as not important....but sometimes they help to shape us, grow our faith and make us who we are.  There was a purpose in it.

I like to think of those pivotal moments in my life as my little pile of stones marking where God and I met.   An altar of testing and revelation.  Old testament style.  I have a few of those little piles marking the road I've traveled down.  Those markers enter my mind every once in a while and I revisit that spot to offer thanksgiving.
One of those places  is the period of time when we thought Roman had cancer.
On the surface it now seems like something not worth writing about but for some reason it is on my heart to venture there with my thoughts and rediscover once again what God was doing at that time.


In 2005/2006 we were in Mexico for the first time as a family.  My scrawny, adventurous two year old boy was having a fantastic time in his new home, but he was getting sick a lot.  He suffered from fever after fever with no other apparent symptoms....and his lymph nodes were notoriously enormous.  I wasn't really concerned, but at one point I took him to the mission clinic to see a visiting pediatrition.  I wanted him to have his tonsils looked at and have a little check up since he had been sick again.  The dr. seemed to focus all his attention on his various lymph nodes and asked to see him when he visited the mission again in a month.  I didn't think anything of it.

A month later I was speaking in our staff devotional/ chapel (all the staff took a turn) and for the first time I told the story of our first son Samuels death.    I remember saying that life's storms usually catch us off guard but how firmly we're anchored to our Rock before hand will determine how we weather the storm.  I remember saying how, through our sons death, I learned to release and trust my children to God.  They are mine to cherish but not to cling to.
Little did I know that those very words would be tested that same morning.

After I was finished speaking I walked my little boy down to the clinic to wait our turn to see the visiting doctor.  Roman was weighed and his stats were taken.  Throughout the examination my mommy senses were flashing all kinds of red alerts.  I had the same feeling I did during ultrasounds gone terribly wrong.   It was a strange appointment with the dr. not really saying much of anything , yet in his silence he spoke volumes.   He just kept feeling the big rubbery round lymph nodes that stuck out of his neck and formed a chain all the way down to his ankles.  He asked a few odd questions about his other symptoms and felt his stomach.   He asked when we were returning to Canada and I told him we were leaving in a few weeks.  He seemed satisfied with that and recommended we see a dr. in Canada when we return.
I left the clinic with a strange feeling.
I told my husband about our odd appointment and how I knew there was something that the Dr. wasn't telling me.
My husband walked across the dusty mission grounds over to the crowded little clinic and found the Dr. who was visiting from California (where he is a pediatric oncologist.)
My husband returned to tell me that the Dr. thought Roman had leukemia.  He had lost weight.  He had many of the symptoms.  His spleen was very enlarged and his lymph nodes felt like cancer.  The doctor told him "If Roman was my child I would get him home immediately".

I felt like I had been kicked in the stomach.  Only an hour earlier I had talked to a group of people about trusting God with the things that we treasure most.

I have experienced enough to know that sometimes the worst possible outcome is possible...and yet I felt unexplained peace.

We decided to head home a little early to have further biopsies and testing done.   We only told a few people about our change of plans and why we were heading home a couple weeks early.   I didnt' want to raise the alarm or scare people without knowing for sure what was wrong.  My family was already going through so much that winter with the fatal diagnosis of my brother in law.

We had planned on driving back through Washington state to visit my husbands family and spend Easter with them.   It was excruciating for me to have to take an extra week to get home.  He seemed to become sicker as we traveled.  Other strange symptoms began to arise, like complaining his body and legs hurt.  He had very little appetite and about once a day he threw up.  It wasn't like a stomach flu though and of course my imagination started to attribute it all to something sinister.
While we were in WA. an old family friend (who had become a pediatric oncologist) heard about our visit and stopped by to check on Roman.  We hoped and almost assumed he would tell us that the other Dr. was over reacting and we had nothing to worry about.
He did a physical examination of my pale, skinny (he could no longer hold up his tiny size 2 underwear) boy and told us something to the effect of "I don't want to alarm you but... I spend my time with children who have cancer and by all appearances it is very likely that he has Luekemia."  He validated all that the last Dr. had said , described what he was looking for and explained how Roman met  the symptoms.  He told us his spleen was 2-3 times it's normal size.
The room was silent.
I resigned, in my heart ,at that moment that my son had cancer.   I felt we were standing at the edge of a cliff readying ourselves to be pushed off.
My first reaction was to go shower.  It was a place to escape for a few minutes.  
I had conversations with God in that shower that went something like...

"Father,  I have no idea what road you're taking us down or why.   If this is the path you have chosen for us I know you have a purpose in it but I don't like it and I know I'm not strong enough to do this alone.  I can't lose another son.  This was the boy I waited for.   He is my gift from you.  I have loved him enough  for two sons.   
"Trust me"  
"Lord you know if there is one thing in my life that can be taken from me that will cut me deeper than anything else it is this boy....but Lord I trust you  through whatever lies ahead.  He is yours.  I know that you can restore him to health and heal him but I also know that your will is beyond my understanding. You know the days of this boys life just as you know every hair on his head"


I was totally surprised that I felt such a sense of peace and confidence.

Before I come across all super-spiritual this response caught even me off guard.  I could feel the Holy Spirit responding in me and for me...it wasn't my nature.  A few months earlier when we got the news that my sisters young husband had inoperable brain and spinal tumors I really struggled, I freaked out....I couldn't bring myself to even utter a prayer for a week.  I was angry.  Spitting mad.  That is my nature.

I'm sure I would have run through a whole different range of emotions with our sons illness had this story turned out differently.  Fearing the worst and actually living through it are two very different things.

For two weeks we assumed the worst.  I pictured our life at home spent travelling back and forth to the hospital for treatments.  I prepared myself to fight for my sons life.  I pictured our summer spent at a sick kids hospital.
I thought about losing him.

We had contacted our Dr. back home (who was also a friend of ours) and she told us to bring him in as soon as we got home.  We were told to pack an overnight bag in case we were sent into the big city hospital.

We arrived home late at night so we planned on going in for more testing the next morning.
That would be the day when we would know for sure.   Suddenly the thought of knowing for sure terrified me.
After a rough morning of poking and prodding my little boy,  I  waited for the Dr. to call with the results of the initial blood test which would determine what other tests would be next.

I was utterly shocked when she phoned and said that the blood results looked completely normal.  I found it hard to believe her.  We then went over to the clinic for the physical exam.  His spleen was a normal size.
Even after being confirmed with an ultrasound.
She scheduled us in with a Pediatrition a couple weeks later just to be sure and to have a good check over....and to put our fears at ease.

So there it was.  It was over and the bullet was dodged.
I was so thankful but also slightly confused.
The random fevers stopped and over the next few months he gained back some weight.
What had just happened?

Within the next few days we started getting messages that people were praying for Roman.  We had only told a couple members of our immediate family, and a few friends in Mexico but word got out and God's people had been praying.  A lot of them.   In three different countries, among several different churches there was intercession and prayer being spoken (by people we didn't even know) on our sons behalf.
I was shocked and so. very. humbled.

As the realization of how many people had been praying sunk in I felt God speak directly to my heart...
"Why would you be surprised that your son is well?"

Prayer is powerful.   God is powerful..
When brothers and sisters unite in prayer, in three different countries, why would I be surprised that it was God's plan to show us his faithfulness?

To this day I do not know if Roman could be considered "healed" in the miraculous sense, but God heals in a lot of different ways.  I have always rationalized it as being some other explainable illness or combination of problems that resolved over time.  He was sick...and he got better.  That's all that matters to me and I thank God for it.

It didn't matter to me how God did it, why, or what Roman was spared from....
we had our son back and cancer treatments were no longer part of our summer agenda.

On the surface it seems "much ado about nothing"..but as I prayed and reflected on the roller coaster we had just plunged down I realized how much I had learned and was still learning about faith.

It may sound strange but I later felt like it was a time of testing...not  like a pass you get your son back , fail and you don't....but training.  A practical application lesson in something I was giving lip service too.

 In the Bible Jesus was constantly putting his disciples to the test.  He would teach them something and then in order for it to become more than head knowledge he would set them adrift in a little boat on stormy water for a while.
In the weeks to follow God kept taking my mind and reading back to the story of Abraham and Isaac.
I wept as I read and as the Spirit ministered to my heart.  I felt completely broken, humbled and filled with joy at the same time.
 My Isaac had been asked of me and figuratively I had laid him on the altar.  My idolatry, my fears, my desire for control, and my faith that God could provide, was laid out bare and exposed...vulnerable.  I rejoiced when  God provided the ram, and gave my son back to me.  Once again, during those conversations I had with God during those two weeks,  nothing of my own security or strength was left to cling to...it was just me and my Savior.

My son turned 8 years old this week and I give God the glory.  It's easy to take our children for granted, even for me.
I may not have  "nearly lost him" but in my mind I did contend with that possibility.
That process has a way of making a person see life a little differently.
 I am firmly , maybe almost too firmly, grounded in reality and possibility of life's heartaches and suffering but I think "going there" also creates a perspective of life in high definition.  Each moment, day and year is a gift.

I realize that this could be the last day before my life is pulled out from under me...but I don't fear it.
Every time I tuck my child into bed or send them out the door could be the last time I kiss my child goodbye....but I am not crippled with worry.


 I  trust.
It is a process for me,
but it produces peace that only comes from God.   Trust  is confidence,  knowing that God has all authority and He has the final say.  I have tasted and I have seen that the Lord is Good.   I can fully rest in that.

"Taste and see that the Lord is good, blessed is the man who takes refuge in him"  Psalms 34:8

7/11/11

Happy 8th Birthday Little Man!



8 years ago today a beautiful baby boy was born with  big blue eyes and a head full of spiky hair. 
My son, you have always held a very special place in my heart.



You live and love with an enthusiasm that would be hard to match.
You exemplify all that is wonderful, wild, and mysterious about boyhood.


My super snuggler.
My handsome prince.
My noble knight.
My fearless explorer.


This morning, 
on his first morning of being an 8 year old
he greeted me with his usual enthusiastic full body hug.
As he awkwardly bounced up onto my lap like a German Shepherd who thinks he's a lap dog...

I held on a little longer. 
I held him a little closer.
The childhood years are rushing by and I find myself catching glimpses of the man he will be.
Someday soon I won't have to worry about him knocking over my coffee cup or disturbing my early morning peace...
and I just might miss it.  



...

7/10/11

Fully Healed



As we sang this song at church this morning I stood with my arms raised and tears running down my cheeks.  Both grief and joy mixed and caught me off guard.

Yesterday a very special young man named Javier was healed.  He was freed from the body that was so very weak and sick as he was called home by his Heavenly Father

Javier's beautiful soul, that was such a blessing to all those who knew him, is now with the Lord he loved so much.
He lived his life wracked with physical sickness and disability but with every corner of his spirit he lived in the fullness of Christ....la plenitude.


That boy always cracked me up!  I don't know what I was laughing about but I guarantee Javi was at the root of my amusement.  Just look at the smirk on his face.  He was probably telling me I should ditch my man and marry him.  


It was an honor to call him my friend.


His joy was contagious.
His smile ,that required more strength than he had, was infectious.
He was an adolescent boy that was utterly dependent on his caregivers for every physical need but
he lived his life with a  faith and strength that few of us will ever know.
He lived life in it's fullness.

Although we grieve, it's hard not to be happy for him.
His faith is now sight .
He loved to sing and now he is singing along with choirs of angels.
He can run, dance, climb and jump.
He can run into the arms of his Savior.

I know this boy had a special place in the Father's heart, and even though he was the weakest among us he had a mighty calling.   He brought people closer to the heart of God.


Javier worshiped and praised the name of Jesus with every bit of strength he had...even while he suffered.


Javier I miss you already.
I had hoped that when I  left Mexico 15 months ago that we would meet again soon.
I'm sad that I won't be able to take you for bike rides, see your smile, or crack jokes with you when we return....but I know we will see you again.  Soon.  I remember saying "hasta luego" (see you later) to you instead of goodbye when we left because goodbye's suck.   Hasta luego  y te quiero mi amigo.

Javier will be missed terribly by his family including his brother who also has Muscular Dystrophy.  I can't image how hard it must be for him.  Javier lived with his family but spent his days at the Missions "Learning Center for Children with Disabilities".   He was a part of everyone's life at the Mission/Orphanage in Baja.  He will be missed by all those who cared for him.    Please keep them in your prayers.  He was well loved by so many and will be missed.

No more sorrow.  No more pain.

This next song I've heard was one of Javier's favorites.  A song he requested to be sung to him on his death bed.


It is a beautiful song.  I loved singing this one at our church in Mexico.
The first few seconds of this version are cheese ball but stick with it.
For those who are Spanishly challenged...
It translates something like this (keep in mind I'm still quite linguistically inept).

God will not reject your prayer
Prayer is nourishment
I've never seen the righteous go unanswered
or remain in suffering.


We only need to wait
on what God will do.
When you raise your hands
It's the hour of victory


Oh, praise (worship)  {Him}
just praise  {Him}
When you're crying...praise
In the test ....praise
When you're suffering...praise.
It doesn't matter...just praise.
He will hear your praise.


God goes before you and makes a way
breaking chains and pulling thorns
He sends His angels to fight with you
He opens doors no one can shut
He works for those who trust
and walks with you day and night
raise your hands and begin to sing
your victory has arrived


People need to understand that God 
is working, even when he seems to be silent.
When you extend your hands
it's the time to overcome.


Praise God, Praise God...




No one I know lived this truth more fully than Javier did.


"....God chose the weak things of the world to shame the strong.  
He chose the lowly things of this world and the despised things-
and the things that are not- to nullify the things that are
so that no one can boast before him.
It is because of him that you are in Christ Jesus, 
who has become for us wisdom from God,
that is, our righteousness, holiness, and redemption.
Therefore as it is written; "Let him who boasts boast in the Lord"  
1 Corinthians 1: 27-31



7/7/11

A day with my littlest boy


I spent the day today hanging out with Silas in the City.   Si had an audiologist appointment scheduled so I took advantage of the situation, and my mother, to create some alone time for him and I.   Aili is still at camp and the other two spent the day with Grandma and Grandpa.  My hubby tagged along last minute because he needed to shop for farmer stuff.   He dropped us off down town for the afternoon while he did his man shopping.

It doesn't take much to entertain my little country boy.  As we entered the mall his eyes lit up and he ran for the escalator like it was a ride at Disney land.   We rode up and down several times...and if that wasn't odd enough, I snapped a picture.   I happened to have my tiny camera in my purse so I decided to capture our day together.  As we pulled ourselves away from the thrill ride he exclaimed  
" I LOVE the mall, Santa lives here!"
I had to explain that Santa only comes to the mall at Christmas time...he was rather disappointed.
 I think Christmas was the last time we were at the mall. 

We shopped the clearance racks and bought some really "awesome" blue and black "Dawg's" shoes for Silas to wear proudly the rest of the afternoon.  FYI they are really "bouncy".  He discovered this by hopping through the store.  Maybe he'll like them so much he'll actually keep them on his feet. 
We then picked out $5 summer shoes for the rest of the kids.  Silas thought it was great fun. 


We made our way to the food court where the choices are as endless as the excitement.  
It is a virtual culinary heaven.   We decided to share a "fmoovie" and "fwen fwie"

As we left the mall and made our way over to the audiologists office we came across a sidewalk sale (some sort of city folk party).  A free balloon ,  a bouncy house, and a moment spent dancing next to the outdoor band nearly made us late to his appointment but it was worth it.

Those are some rockin' dance shoes!

After our stroll through the street party...we walked another couple blocks to his appointment (as briskly as a four year old intrigued by absolutely everything possibly can ).   Coincidentally the audiologists office is in the same building as Social Services.  The baby post office where I pick up and drop off babies like little packages.  It was even on the same floor. 
 I assured Silas that we were doing neither one today (he's still convinced that we adopted him from Mexico).

Silas, although quite poorly behaved in the waiting room, was wonderfully cooperative and brave as his hearing was tested.   I am happy to report that his hearing is fine (even after having chronic awful ear infections throughout his infancy)
I am not  happy to report that my son's apparent ability to not hear my voice is due to my poor parenting....and not a problem with his ears.  
His horrid speaking skills aren't due to a lack of being able to hear either.  I guess we're back to the drawing board with that too. I am glad that it's not something permanent like his hearing that is the problem. 
 His vocabulary, use and understanding of language is extensive but somewhere between his ears, brain, and tongue he can't quite form his thoughts into the right sounds.  


The audiologist gave him a whole pack of Lifesavers which he scarfed while we waited for Dad to pick us up.  
It was a gorgeous, hot, summer day spent with a little boy that I don't spend enough happy, one on one time with.
I felt bad that we didn't have time to do "fun stuff" today.   By the time we drive to the City, do some shopping, buy groceries and go to an appointment it's time to make the 2 hr trip home again.   

Although it didn't take long for me to realize that Silas thought this was the "fun stuff" (I think it dawned on me as we rode up the escalator for the second time)  so I made an effort to squeeze every bit of fun, conversation, and interaction into our afternoon.  
We discussed traffic lights and city buses.  We admired curbs and tall buildings.   
We rode every escalator we  passed.



All that walking and excitement tuckered him out and it was a quiet ride home...
which gave my hubby and I some peaceful conversation time.


(the bugs bunny band-aid on his head is covering a "butterfly" bandage which is covering a hole he made in his head with the mean end of a belt.  Lesson learned: When flinging a large belt around like a lasso make sure the buckle stays far away from the side of your head.)

7/5/11

A very random summer update



It's been a while since I posted last but as summer arrives I am less and less inclined to be sitting at my computer...although curled up with my laptop in a hammock enjoying the sunshine would be heavenly.  
July ,for us, is a lot of coming and going, yard work, gardening, camping, and fun summer activities that we try to squeeze into about 1 1/2 months of summer weather.

This week Aili is away at summer camp.  Last week was Romans turn.  Having kids leave for days at a time is worth a blog post in itself!  I must admit this week I am missing my little helper and chief laundry folder.

 This past weekend  we spent 3 nights camping with four of my siblings (one little sister is still in Haiti), their spouses, my parents, and a whole herd of kids.  It was so nice to spend some time with all my family.  It's been a long time since we were all in one place.   I may write more on it later.  I love my family!


Speaking of family, next week my bestest friend and sister in law is coming to Canada to spend a month with us!!
She and her adorable son were here last summer (our first time meeting in person) and we have conspired to spend another summer together.  We have lots of lost years to make up for.  
We are once again attending "Family Camp" together for 7 days of camping, playing, learning, and worshiping.
I'm counting down the days!



Miss Cece has started walking officially!  She flipped a switch yesterday and decided to become a walker...after months of being a chicken.  She was a total faker. 
It just never gets old.  I swear I'm just as shamelessly excited seeing her walk as I was my first daughter!

She had her first day at the beach last week and absolutely loved it.  She was happy as a chubby little polka dotted clam playing in the sand and splashing in the lake for hours.  

I am having so much fun watching her discover summer! 

As far as the adoption process goes...we're still in what feels like the worlds longest checkout line.  Nothing much happening, just waiting, waiting, and more waiting.  We've decided to settle in and not count on it being finalized this year, which means (unless something drastically changes) no winter spent  in Mexico like we had hoped.  We all want to go so badly but we are learning lots of lessons in patience, trust and contentment.   It really could be worse, but it would be nice to at least catch a glimpse of the finish line. 

ohhh...we also got family photos taken by a friend of mine.  They turned out so great!  I love them and I already have some enlarged, printed out, and framed in my house....and some up on FB.   You'll likely see some of the shots and individual photos in future posts but the family photos are kind of tricky to post here  since I can't post her face publicly yet. You're welcome to come find me on Facebook though. 

I hope you are all having a sunny and warm summer filled with lots of fun family memories!

6/30/11

A little mama and her baby



My girls. 
Like bookends in my family.
One is leaving behind infancy and becoming a little girl.
The other is morphing from little girl into a young woman.

They absolutely adore each other.
I pray they are always close,
even when they are both grown.  
I pray Cece will always have a doting cheerleader in her big sister, someone to look up to and a shoulder to cry on when life gets tough.  
I pray Aili will always have a sister friend that she can laugh through life's joys and sorrow's with. 
Those 9 years will shrink in a couple decades, 
but I love that unique big sister/ little sister relationship they have right now.
A little mama and her baby.
A little girl and her super hero.